At 5 days old when it became clear that waiting for a bed at GOSH would take a long time Colchester decided to do a sleep study of their own to see if they could help speed her GOSH referral up with some more information. The sleep study indicated severe airway obstruction when on her back so they inserted a nasal airway (this is called an NPA). They advised their nasal airway was only a temporary one and that GOSH would be able to put in a permanent one and provided us with training to mange it ourselves. Colchester stated they were not able to give the training and neither was anyone at Broomfield cleft team so we HAD to wait for the bed at gosh.
Colchester stated that as their sleep study indicated her airway obstruction was severe she would be treated as a priority for GOSH to admit her. We were told that a call could come in any day about a bed being available and that we would need to move fast, but it wasn't until another 24 days that one became available.
Photo on the left is of her getting hooked up for the sleep study and on the right is her with the temporary NPA the day it was inserted. The temporary one has plasters all over her face to keep it secure. It was sad not being able to properly see her beautiful face and stroke her cheeks and head with plasters in the way:
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