Roslyn was diagnosed with Pierre Robin Sequence at birth. This involves respiratory difficulties and a large U shaped cleft of the hard and soft palate.
It was later confirmed via genetic testing that Roslyn has Stickler Syndrome type 1 (likely causing her PRS) and adding further implications such as eye issues.
She is otherwise a happy, healthy and very loved girl.
This is our journey.
Roslyn March 2023
Jaw growth
I will be using this page to update and document her jaw growth.
Collage of jaw and chin when newborn:
Collage of jaw/jaw at 2-3 months old. Already a huge difference which is great news for her airway!
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