Roslyn was diagnosed with Pierre Robin Sequence at birth. This involves respiratory difficulties and a large U shaped cleft of the hard and soft palate.
It was later confirmed via genetic testing that Roslyn has Stickler Syndrome type 1 (likely causing her PRS) and adding further implications such as eye issues.
She is otherwise a happy, healthy and very loved girl.
This is our journey.
Roslyn March 2023
What is PRS
See below for a photo of Rosie's cleft and a video of her obstructive breathing prior to NPA being inserted.
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